Hi to all
I would like to thank lorna for putting me onto mangosteen as I told lorna I would get the ok from my rummie doc first ( he said yes at once) and it has been ordered so I hope to get it soon and after a month I will report back once again many thanks lorna

Hi John,

Sorry I have not been on much, so glad to hear you have had such a good experience with the Mangosteen. It is a powerful antioxidant fruit from South East Asia and it is said to be the queen of fruits. I have never looked back since I started taking it, I have no pain at all, and have not had any in a number of years now.

John I was thinking about you recently and wondering how you got on with it. I am so happy to hear you have found an improvement in your well being. With the improvement will come a more positive outlook, I do so hope it continues for a long time. Do keep on your therapy drugs though, which I am sure you do.

Fantastic news.

Lorna

Hi Zena,

Ask Nras to email me your phone number and I will call you with details of my supplier. I have taken it for 4 years and I swear by it. Look forward to hearing from you.


Lorna x

Hi all!

Whilst I appreciate that a few people have seen 'benefits' from taking Mangosteen, less pain/inflammation, it should be borne in mind that it has not been medically proven to be of any benefit in the treatment of RA. It is undoubtedly high in anti-oxidants, which seems to account for some of it's success, but equally a well balanced diet would have the same effect.

Mangosteen is known to be a central nervous system depressant (presumably why it is able to help with pain issues!) and can lead to an increase in blood pressure and associated problems. Always check with a rheumatologist before starting any complementary/alternative therapy. We have pain for a reason, it signifies that something isn't working as it should. If those signals are depressesd potential problems can very easily be missed. Standard pain treatments are tried, tested and well documented and prescribed by someone with extensive medical knowledge of our condition. Mangosteen comes to you courtesy of companies who are there to make a living from you and at £60 a throw ...

We all want something that will make us better and at the outset (24 years ago) I tried just about everything going, green lipped mussel, willow bark, cider vinegar, honey, etc.. All to no avail! And, I am not the only one to have travelled this path!

Lyn x

Hi everyone.

I haven't posted for a while for personal reasons but feel I must make a comment here. I have taken mangosteen for 9 months now. I started taking it in may last year and have gone from strength to strength. I am now in remission and have been for 6 months. Firstly, I must say that the word remission is on a letter from my Consultant, it isn't a word I have made up to make it sound better than it is. My DAS score is now 2.2. Secondly, I am not saying that the mangosteen is the sole reason for my remission. It is probably a combination of things but it certainly has played a big part in my wellbeing. I also have a large amount of black cherries and blueberries each day (more anti oxidants). My methotrexate and my thyroxine have also been reduced. There again, I am not saying that mangosteen is totally responsible. I have always eaten a well balanced diet and as a family we eat very healthily but you do not usually have enough anti oxidants to make a difference in your diet.

When I started to take mangosteen I told my Consultant who was a bit sceptical, 4 months later she saw how well I was and 4 months after that declared that I was in remission and that they (the medical profession) were taking seriously the fact that anti oxidents are very beneficial, not just in RA but in wellbeing generally and that is all mangosteen is, it isn't some voodoo drug, it is just fruit. I know there are lots of people who want to knock it and that's up to them but please don't diss anything until you have tried it. I know it sounds expensive but when you work it out daily it is the cost of a newspaper. One very important thing to say here is that it is not a cure and drugs are still necessary. It won't be right for everyone but it works for me and I will not be stopping taking it.
As I was leaving my consultation my Consultant's final words were " keep taking the mangosteen."

Sheila x

Thanks Jean and Doreen. Will be back on in a few weeks, hopefully. Take Care.

Sheila x

Hi Lyn,

I urge you to try this, there is NOTHING in it to upset your system. I know you have tried lots of pills and potions etc. and I also know you have had bad experiences years ago. My daughter is a Scientist and checked this out thoroughly as did Sheila's son who is also a Scientist. It is a super fruit from South East Asia.

I was newly diagnosed 4 years ago at which point I was desperate and also started taking a cocktail of toxic drugs for my RA. I have taken this Mangosteen all this time and I am ALSO urged by my Consultant to keep taking it. I have had 3 x rays in 4 years, due to get the works this year again, I was told at my last appointment.

I know you have had RA for such a long time and I do feel for you for what you have been through, but everyone I give my supplier to, is told to check this out with their Consultant or Doctor before trying it. Bear in mind this is then taken on the advice of their Consultant or Doctor. I have been pain free for years, my Doctor comments on how well I keep. My Consultant checks my joints regularly for any changes and so far all are as they should be. The last thing she says to me when leaving is KEEP TAKING THE MANGOSTEEN. You can't argue with a Consultant.

You should give it a go on the advice of your Consultant, you never know you may just find it to be a help as others have now found. Mine is pure Mangosteen Gold I can give you the number anytime or send you a Label to show your Doctor or Consultant. If there is anything to cause a problem surely it would have shown in my blood tests after 4 YEARS.

I have given this number to lots more people I met in Maidenhead, who are on the advice of their Doctors or Consultants going to try it.

If enough people try this and find a difference I intend to contact my supplier to see if we can secure a discount for people with RA. You never know it may be a great help to you too.

Nice hearing from you recently,

Love Lorna x

Hi to all
Your comments were useful as it has caused debate or to use the old saying opened a can of worms but I would like to go back on a few posts that I have put up in the past on this subject. I have said you cannot knock somethink until you try it/ I also think it is very useful to get RA doctors advise first (as I did and he found no problem with them for me) as it may not help you as to the meds you all ready take. Next this figure of £60 I have paid £25 max for mine so I must have hit on a good supplier as I was put on this by lorna. As my post says I would like to know what is in the juice because it has helped me I have read all the posts and many of you can rely on medical kin to give advice I am not a doctor all I have said is that it has helped me all I am saying is do not say this is not in the book so it must be no good. I will no doult get replys saying how wrong I am but I will end by saying it works for me and it may not work for all so take advice from RA docs try it if you want for the others then that is fine (thank you lorna for having told me about this in the first place)

Hi Eve

Eaten in moderation you shouldn't have any problem. I was on two full grapefruits a day, a high dose of methotrexate and at the time low body weight due to the ravages of the RA! Think I was the ideal candidate for contraindications. Needless to say I eat grapefruit only rarely these days and not on methotrexate day, just in case There is much documented evidence on the internet about grapefruit and methotrexate and the metabolic process, but you do need to ensure information comes from a reliable source (there's plenty of rubbish out there too!) The Canadian government did a lot of research and a follow up study about this in the 1990s, the details may still be available.

It's not marmalade that is a potential issue, it's the seville oranges used in the manufacturing process of the marmalade. You should be okay to have your daily toast and marmalade! Pomegranate juice alongside lime and star fruit have all been recognised as products that may affect the metabolic process and the uptake of certain drugs within the wall of the small intestine. At present there is limited information available on this but research continues. Again circumstances would have to be right for a contraindication to occur.

I would post some links but I am on a different laptop at the moment so can't access my resources right now (they're at Lincoln uni with son, I'm in Blackpool!).

Here's one, although there are much better references that explain the process involved rather than just state the fact!

Your pharmacist should be able to offer advice on these sort of things, more so than the rheumatologist who may not be fully aware of all contraindications. Hope this helps a little

Lyn x

PS Only oral methotrexate is affected; injections bypass the digestive system and are absorped immediately and directly into the blood stream.